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000047946 020__ $$a9780191918919$$qeBook
000047946 040__ $$aSzGeWIPO$$beng$$erda$$cSzGeWIPO
000047946 041__ $$aeng
000047946 1001_ $$aHallinan, Dara,$$eauthor.
000047946 24500 $$aProtecting Genetic Privacy in Biobanking through Data Protection Law
000047946 264_1 $$aOxford:$$bOxford University Press,$$c2021
000047946 300__ $$a1 online resource (304 pages)
000047946 336__ $$atext$$2rdacontent
000047946 337__ $$acomputer$$2rdamedia
000047946 338__ $$aonline resource$$bcr$$2rdacarrier
000047946 520__ $$aBiobanks are critical infrastructure for medical research. Biobanks, however, are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25 May 2018, the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking. It argues that the substantive framework presented by the GDPR already offers an admirable baseline level of protection for the range of genetic privacy rights engaged by biobanking. The book further contends that while numerous problems with this standard of protection are indeed identifiable, the GDPR offers the flexibility to accommodate solutions to these problems, as well as the procedural mechanisms to realise these solutions.
000047946 588__ $$aOnline resource
000047946 650_0 $$aData protection$$xLaw and legislation$$zEuropean Union countries
000047946 650_0 $$aMedical records$$xLaw and legislation$$zEuropean Union countries
000047946 650_0 $$aBiobanks$$xLaw and legislation$$zEuropean Union countries
000047946 85641 $$uhttps://doi.org/10.1093/oso/9780192896476.001.0001$$yView eBook
000047946 903__ $$aOxford Academic
000047946 904__ $$aJournal article
000047946 980__ $$aOS