@article{47946,
      recid = {47946},
      author = {Hallinan, Dara,},
      title = {Protecting Genetic Privacy in Biobanking through Data  Protection Law},
      pages = {1 online resource (304 pages)},
      abstract = {Biobanks are critical infrastructure for medical research.  Biobanks, however, are also the subject of considerable  ethical and legal uncertainty. Given that biobanks process  large quantities of genomic data, questions have emerged as  to how genetic privacy should be protected. What types of  genetic privacy rights and rights holders should be  protected and to what extent? Since 25 May 2018, the  General Data Protection Regulation (GDPR) has applied and  now occupies a key position in the European legal framework  for the regulation of biobanking. This book takes an  in-depth look at the function, problems, and opportunities  presented by European data protection law under the GDPR as  a framework for the protection of genetic privacy in  biobanking. It argues that the substantive framework  presented by the GDPR already offers an admirable baseline  level of protection for the range of genetic privacy rights  engaged by biobanking. The book further contends that while  numerous problems with this standard of protection are  indeed identifiable, the GDPR offers the flexibility to  accommodate solutions to these problems, as well as the  procedural mechanisms to realise these solutions.},
      url = {http://tind.wipo.int/record/47946},
}