0300072511 9780300072518 cloth 0300080638 9780300080636 0585359431 electronic book 9780585359434 electronic book
Alternate Call Number
G 251 ROT.G
Summary
The dramatic explosion of information brought about by recent advances in genetic research brings welcome scientific knowledge. Yet this new knowledge also raises complex and troubling issues concerning privacy and confidentiality. This thought-provoking book is the first comprehensive exploration of these ethical, legal, and social issues. Distinguished experts in law, medicine, bioethics, public health, science policy, clinical genetics, philosophy, and other fields consider the many contexts in which issues of genetic privacy arise - from research and clinical settings to workplaces, insurance offices, schools, and the courts.
Bibliography, etc. Note
Includes bibliographical references and index.
Formatted Contents Note
I. Background. Genes, genomes, and society / Leroy Hood and Lee Rowen Genetic privacy : emerging concepts and values / Anita L. Allen Genetic exceptionalism and "future diaries" : is genetic information different from other medical information? / Thomas H. Murray. II. The health care setting. Genetic privacy in the patient-physician relationship / David Orentlicher A clinical geneticist perspective of the patient-physician relationship / Eugene Pergament Privacy in genetic counseling / Barbara Bowles Biesecker Informed consent and genetic research / Ellen Wright Clayton Genetic screening from a public health perspective : some lessons from the HIV experience / Scott Burris and Lawrence O. Gostin. III. The effect of new technology. Confidentiality, collective resources, and commercial genomics / Robert Mullan Cook-Deegan Biomarkers scientific advances and societal implications / Paul W. Brandt-Rauf and Sherry I. Brandt-Rauf Environmental population screening / Jonathan M. Samet and Linda A. Bailey Are developments in forensic applications of DNA technology consistent with privacy protections? / Randall S. Murch and Bruce Budowle DNA data banks / Jean E. McEwen.