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000022867 24500 $$aGenetic secrets :$$bprotecting privacy and confidentiality in the genetic era /$$cedited by Mark A. Rothstein.
000022867 264_1 $$aNew Haven :$$bYale University Press,$$cc1997.
000022867 300__ $$axvi, 511 pages :$$billustrations ;$$c24 cm
000022867 336__ $$atext$$btxt$$2rdacontent
000022867 337__ $$aunmediated$$bn$$2rdamedia
000022867 338__ $$avolume$$bnc$$2rdacarrier
000022867 504__ $$aIncludes bibliographical references and index.
000022867 5050_ $$aI. Background. Genes, genomes, and society / Leroy Hood and Lee Rowen -- Genetic privacy : emerging concepts and values / Anita L. Allen -- Genetic exceptionalism and "future diaries" : is genetic information different from other medical information? / Thomas H. Murray. II. The health care setting. Genetic privacy in the patient-physician relationship / David Orentlicher -- A clinical geneticist perspective of the patient-physician relationship / Eugene Pergament -- Privacy in genetic counseling / Barbara Bowles Biesecker -- Informed consent and genetic research / Ellen Wright Clayton -- Genetic screening from a public health perspective : some lessons from the HIV experience / Scott Burris and Lawrence O. Gostin. III. The effect of new technology. Confidentiality, collective resources, and commercial genomics / Robert Mullan Cook-Deegan -- Biomarkers--scientific advances and societal implications / Paul W. Brandt-Rauf and Sherry I. Brandt-Rauf -- Environmental population screening / Jonathan M. Samet and Linda A. Bailey -- Are developments in forensic applications of DNA technology consistent with privacy protections? / Randall S. Murch and Bruce Budowle -- DNA data banks / Jean E. McEwen.
000022867 520__ $$aThe dramatic explosion of information brought about by recent advances in genetic research brings welcome scientific knowledge. Yet this new knowledge also raises complex and troubling issues concerning privacy and confidentiality. This thought-provoking book is the first comprehensive exploration of these ethical, legal, and social issues. Distinguished experts in law, medicine, bioethics, public health, science policy, clinical genetics, philosophy, and other fields consider the many contexts in which issues of genetic privacy arise - from research and clinical settings to workplaces, insurance offices, schools, and the courts.
000022867 650_0 $$aMedical records$$xLaw and legislation.
000022867 650_0 $$aPrivacy, Right of.
000022867 650_0 $$aConfidential communications$$xPhysicians.
000022867 650_0 $$aMedical genetics$$xMoral and ethical aspects.
000022867 650_0 $$aPatents.
000022867 650_4 $$aPATENTS : PATENTABILITY : MICROBIOLOGY, MICROORGANISMS
000022867 650_4 $$aGENETIC INFORMATION : PRIVACY AND CONFIDENTIALITY
000022867 7001_ $$aRothstein, Mark A.,$$eeditor.
000022867 903__ $$v1
000022867 942__ $$cMON
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000022867 980__ $$aBIB
000022867 999__ $$c24933$$d24933