\(
\def\WIPO{World Intellectual Property Organisation}
\)
Genetic secrets : protecting privacy and confidentiality in the genetic era / edited by Mark A. Rothstein.
1997
G 251 ROT.G
Available at WIPO Library
Formats
| Format | |
|---|---|
| BibTeX | |
| MARCXML | |
| TextMARC | |
| MARC | |
| DataCite | |
| DublinCore | |
| EndNote | |
| NLM | |
| RefWorks | |
| RIS |
Items
Details
Title
Genetic secrets : protecting privacy and confidentiality in the genetic era / edited by Mark A. Rothstein.
Author
Description
xvi, 511 pages : illustrations ; 24 cm
ISBN
0300072511
9780300072518 cloth
0300080638
9780300080636
0585359431 electronic book
9780585359434 electronic book
9780300072518 cloth
0300080638
9780300080636
0585359431 electronic book
9780585359434 electronic book
Alternate Call Number
G 251 ROT.G
Summary
The dramatic explosion of information brought about by recent advances in genetic research brings welcome scientific knowledge. Yet this new knowledge also raises complex and troubling issues concerning privacy and confidentiality. This thought-provoking book is the first comprehensive exploration of these ethical, legal, and social issues. Distinguished experts in law, medicine, bioethics, public health, science policy, clinical genetics, philosophy, and other fields consider the many contexts in which issues of genetic privacy arise - from research and clinical settings to workplaces, insurance offices, schools, and the courts.
Bibliography, etc. Note
Includes bibliographical references and index.
Formatted Contents Note
I. Background. Genes, genomes, and society / Leroy Hood and Lee Rowen
Genetic privacy : emerging concepts and values / Anita L. Allen
Genetic exceptionalism and "future diaries" : is genetic information different from other medical information? / Thomas H. Murray. II. The health care setting. Genetic privacy in the patient-physician relationship / David Orentlicher
A clinical geneticist perspective of the patient-physician relationship / Eugene Pergament
Privacy in genetic counseling / Barbara Bowles Biesecker
Informed consent and genetic research / Ellen Wright Clayton
Genetic screening from a public health perspective : some lessons from the HIV experience / Scott Burris and Lawrence O. Gostin. III. The effect of new technology. Confidentiality, collective resources, and commercial genomics / Robert Mullan Cook-Deegan
Biomarkers
scientific advances and societal implications / Paul W. Brandt-Rauf and Sherry I. Brandt-Rauf
Environmental population screening / Jonathan M. Samet and Linda A. Bailey
Are developments in forensic applications of DNA technology consistent with privacy protections? / Randall S. Murch and Bruce Budowle
DNA data banks / Jean E. McEwen.
Genetic privacy : emerging concepts and values / Anita L. Allen
Genetic exceptionalism and "future diaries" : is genetic information different from other medical information? / Thomas H. Murray. II. The health care setting. Genetic privacy in the patient-physician relationship / David Orentlicher
A clinical geneticist perspective of the patient-physician relationship / Eugene Pergament
Privacy in genetic counseling / Barbara Bowles Biesecker
Informed consent and genetic research / Ellen Wright Clayton
Genetic screening from a public health perspective : some lessons from the HIV experience / Scott Burris and Lawrence O. Gostin. III. The effect of new technology. Confidentiality, collective resources, and commercial genomics / Robert Mullan Cook-Deegan
Biomarkers
scientific advances and societal implications / Paul W. Brandt-Rauf and Sherry I. Brandt-Rauf
Environmental population screening / Jonathan M. Samet and Linda A. Bailey
Are developments in forensic applications of DNA technology consistent with privacy protections? / Randall S. Murch and Bruce Budowle
DNA data banks / Jean E. McEwen.
Series
Published
New Haven : Yale University Press, c1997.
Language
English
Record Appears in